Cervical & Gynecological Cancers

9166 messages posted to this board
find messages about   
welcome!
 
last visit to
this board
Aug-23


add to friends
ignore posts
discussion title:
 

? Uterine cancer and my Mom

emoticon:
 emoticon
message #:
  2699.1
from:
date:
  Aug-23 11:42 pm
replies:
  4

Hello,

I'm new here to this board. Just looking for anybody who has gone through this. My dear Mom is 54, and has not been to a gynecologist in at least 12 years or something. She has had a long history of uterine fibroids. She has actually had an enlarged abdomen for years and I remember her always referring to it as "my big fibroid belly". She even has refused to wear t-shirts because they accentuate her belly. I have always urged her to go for her annual female checkups, but she hasnt.

So, earlier this month, she gets sick and ends up in ICU for sepsis (blood infection) and the doctors have no idea what from. While there, when the ER doc feels her lower abdomen by her belly button, he says something like "wow, has your belly always been this big?" My mom answers Yes. They ended up ordering her a cat scan of her belly. Supposedly it is suspicious for cancer, uterine sarcoma. We get an appointment  that same week with a gynecologic oncologist who was referred by a ob-gyn in the ICU.  We met with the gyn-onc, who has scheduled a abdominal hysterectomy for this coming Wednesday. He basically said my Mom has a mass inside her uterus that has to come out, and that she has a couple "small spots outside the uterus" as well. He did not go into details about anything. They ordered her a cat scan of her lungs to make sure these spots did not spread there too. They didn't, thank goodness.

Needless to say, I'm so worried. My Mom has been healthy and working as a nurse all along, up until 5 days before she ended up in the ICU. Then, my Dad sends me an email saying " I don't think your Mom will be around much longer, that's the feeling I have."  I was shocked when I read this. My Dad gets to reading on the internet after drinking beer, and I think he reads the worst of the worst.  I have read that uterine sarcoma is pretty rare, by the way. Even the nurse practitioner working for the gyn-onc seemed confused that a radiologist interpreting the cat scan could diagnose that cancer that way...she says you need a tissue biopsy, which is true.

Has anyone gone through this? I saw a glimpse of what the cat scan of her abdomen said, said something about a "pedunculated uterine mass" I believe. Everything I research with those words points to benign uterine fibroids. Another thing...my Mom lost around 40 lbs or so last summer without diet an exercise except for cutting out beer, which makes me think she could have cancer and I guess has been having pain and tenderness to her abdomen, which she did not tell me until recently. She told me today that she does not think she even has cancer, that she thinks it's her fibroids. She said she does not feel sick.

Thank you for reading this... I just need some postive words. I am scared for the surgery this coming Wednesday. My Mom is truly my best friend, and my world would be a mess if anything happened to her. I don't have any sisters or grandmothers to talk to.  My husband and dad don't understand what I'm going through.

last visit to
this board
Nov-23


messages posted
this board
2128

add to friends
ignore posts
re:
 

? Uterine cancer and my Mom

emoticon:
 emoticon
message #:
  2699.2 in response to 2699.1
from:
to:
date:
  Aug-25 10:36 am
replies:
  4

Best of luck to your mom. I don't really know much about fibroids but I sure wish your mom would have realized the importance of yearly exams, especially being a nurse. It's a shame, but it doesn't sound like it's necessairly cancer. I'm sure your dad is just scared. Please update us on her health.
lisarose.gif image by lisacap21
Community leader for:
   

         

Ilovemygirlsblinkie.gif image by lisacap21Ilovemysonblinkie.gif image by lisacap21

jerseyshore.jpg image by lisacap21

last visit to
this board
Sep-9


add to friends
ignore posts
re:
 

? Uterine cancer and my Mom

emoticon:
 emoticon
message #:
  2699.3 in response to 2699.1
to:
date:
  Sep-9 10:22 am
replies:
  4

Hi there,

I'm a uterine sarcoma survivor. I had surgery as well and took Letrozole, which is often prescribed to breast cancer patients. I was on a one month scan cycle after surgery and then progressed to a three month scan cycle. I then shifted to a 6 month scan cycle. The sarcoma hasn't come back so far, but I recommend that your mom keep up with the scans once the surgery is complete.

Best of luck.

Caroline

last visit to
this board
Nov-23


add to friends
ignore posts
re:
 

? Uterine cancer and my Mom

emoticon:
 emoticon
message #:
  2699.4 in response to 2699.1
from:
to:
date:
  Nov-22 10:04 am
replies:
  4

November 21,2009 -

Preggers77 = Thank you for your post. I hope your mom is fairing well and is receiving excellent treatment. Please let me know how she is doing.  My mom was just diagnosed with Stage 2 = Uterine Cancer this last week. She is 76 years old and, unfortunately, a life long smoker.  Like your mom she hadn't had an annual exam in a long while -- I think, in part, because she is well past menopause. We took her into the ER on November 6th as she was bleeding vaginally. Since then its been a series of tests to include: a biopsy of the uterine wall; blood work, EKG and imaging (which shows her lungs, chest, abdomen, head in relatively good health for her age. We have our first appointment with an oncologist tomorrow (Monday).

I would welcome any and all replies about treatment, nutritional guidance and any other such counsel on how I can support my mom through this. Thank you.

Laura_J_H

Change the number of messages
displayed on this page in
Indicate your interest in the discussion
   
Get updates to this discussion
delivered by email