Migraines & Headaches

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  Sep-26 10:23 am
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Hello everyone,

I was just surfing ivillage and came across this message board- i am happy i found this; im 27 been suffering migraines since i was very young..when i was first diagnosed at 18 with migraines..thats when i realized ive had this pain since i was around 8 yrs old...ive tried every medication out there pretty much- im from ontario, canada so some of the medications have different names than the states; but my neurologist had me try fiorinal for the pain--but only used to keep me from going to the ER. i have tried daily preventatives- with no success, i do have a triptan called maxalt but not to effective- other triptans are pretty much the same; i have another appointment to see the neurologist and she had mentioned flunerazine..i think that is our next step; the fiorinol works great but i have 3 kids and work full time, therefore the fiorinal isnt something i take often unless my husband is home and also im afraid of it becoming habit forming that i really try to stay away from it..the only time i was headache free was from my 4th month to my 9 month of pregnancy..i felt so great i never wanted the babies to come out..but unfortunately it is life and they have to..eversince my third was born the headaches have been at the worst yet ranging 3-4 times per week..i am happy i have a husband that now understands what its like when i get these attacks and he is great with the kids when i need to rest; my mother is great also but she lives 5 hrs away; she also had these horrible headaches but now she is free of them(she claims menopause)..if thats the case.i cant wait to get there!

im happy i found this board and i i will be lurking around to see if anyone has any other suggestions or anythign new to try..

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  10077.2 in response to 10077.1
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  Sep-27 8:30 pm
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Welcome to the group! Glad you've come upon us but sorry to hear about your pain. Care to list specifically what preventatives and abortives you've tried? Have you tried any of the other six Triptans? Each medication is different, so don't give up. It takes a lot of trial and error. If you can find anything that helps, you can keep adding medications to it to reach a good level. 50% reduction in frequency and/or severity is a common goal of both neurologists and patients.

Also, there are alternative treatments such as acupuncture, massage, physical therapy, chiropractic, Botox, nerve blocks, etc. Are you currently working with a doctor? How often do you get migraines and how long do they last? I would suggest finding a neurologist who specializes in migraines, and keep going back every month until you find a good plan of preventatives/s and abortives. Is nausea or any other symptoms also a problem for you?

Best wishes. Let us know if you have any other specific questions and hope to chat with you more soon.

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  Sep-28 7:22 pm
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hi there; well i tried these for abortive zomig, imitrex, relpax, maxalt and axert they were all the dissolve on your tongue for fast relief; then my doc had given me tylenol#3, but i was instructed just this yr to get off those because of the risk of rebound headaches; for prevention i have tried atenolol, propanolol, elavil, nortriptyline,celexa those classes of drugs did help a little bit for the frequency but interfered with my work and school and with the kids because they would all make me very tired; i think our next try is with calcium channel blockers (flunarizine) for prevention and i do have the fiorinal for abortive-but the one drug i will say that works great and lets me get back to normal life is toradol and maxeran through intra venous; but i think we can only get that at the hospital here(ontario)..my migraines typically last up to 5 hours, but at the first sign of one i usually try to get one the triptan asap then go onto the pain relievers;

i have tried acupuncture but i found that it hurt in the sense that i got this numbness where they would insert the "needles"- the massage i only had once and it was nice the one time i had it--it was a gift not for migraine pain- i did see a chiropractor- but he had me going in 4 times per week; i didnt think that was normal(our benefit plan only allows us 500$ per year) i am working with a neurologist its been about 4 years now; i get the headaches 3-4 times per week; i get the nausea, the aura's, i get very tired before an attack also; any type of noise is bothersome and also; emergency vehicles their flashing lights..if they are near me where i can see them..i need to put my sunglasses on, or i completely cover my eyes if i'm not the driver; now i am not sure if my neurologist specializes in migraines but i will try to find out- i have heard of this headche clinic in Toronto- but i havent heard anything about it; searches dont really bring anything up other than there is a clinic...

chat soon

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  Sep-28 8:46 pm
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Can you describe your reaction to Triptans? Any help at all? From your post I interpret that you currently take at least one but may have mixed results? If they were all the dissolving type, I would try both pills and also the Imitrex shot. Sometimes people cannot properly absorb certain types of medications. Also, if your doctor agrees, take two of the pills at once or take one and then wait a couple hours and take another if you do not get relief. Some people need a higher dose. Worth a shot before you give up on this class.

Also, have you tried any ergots (Migranal, Cafergot, etc)? Or, Midrin?

Analgesics have been shows to not cause rebound when limited to 2-3 treatment days a week of the same type of medication. Watch out for any medications that contain Tylenol, Ibuprofen, etc, including cold medicines, sleeping pills, etc. Some people will even take one analgesic two days a week and a different one another two days a week, as long as they both do not have the same analgesic in them.

Good luck with the calcium channel blocker! Another big gun preventative to try is Topamax, an anti seizure medication. That class in general seems to be tough on side effects, but higher chances of working on a tough migraine patient.

When were you taking any of the preventatives that made you sleepy in relation to when you needed to wake up? I did better with those taking them a few hours before bed, as I was already winding down, and then devoting 8-10 hours for sleep. Then, by the time I needed to be functional in the morning I was ok. After a few months at the full dose, those types of side effects seem to get better for many people. Make sure you give each medication a full trial.

If you are at all disappointed with your neuro, please find a new one. Having an experienced doctor is the best thing I ever did for my treatment. Also, you will accomplish much more on your own with research and bringing in ideas to the doctor (as well as being informed about your treatments) than any visit with a doctor. These forums are awesome! I have gone through dozens of doctors and some are much much better than other ones. The best ones seem to like to see you monthly to check progress, switch up meds, etc. They will always have something new to try each visit. They will ask you to keep a migraine log. They may even call you at home to see how you are doing.

How often do you go to the ER? There are some shots your doctor may be able to have your pharmacy special order that you or a loved one can administer to keep you out of the ER after another treatment has failed. Having a plan of a preventative, first line abortive, nausea/vomiting medication, and second line (rescue) abortive is ideal.

Do the migraine typically subside after the 5 hours you quoted? Does taking a sleeping pill and sleeping it off ever help? I'd think if you have a migraine come on, take something and it doesn't abort it, and go to the ER, by the time you get the treatment the migraine may almost be over. For you, multiple preventatives may be a better plan to try and lessen the pain and reduce the frequency. After you do this, maybe you could focus more on the abortives. Once you find a preventative that at all helps, you can add in another one or try a similar one to see if you could get better results. Even if a medication gives you 20% relief for example, if you add a second one that does the same, that's a big difference!

How often do you take Fiorinal? Do you have any head pain on days without migraines? Any luck identifying migraine triggers by keeping a diary including weather, foods, sleep, etc?

Do you get groups of migraines together, or are they in a predictable pattern such as a few a week? Any times of the month worse than others? Think there is a hormonal connection?

Best wishes.

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The reaction to triptans were nothing at all..no relief what so ever..imitrex made me very sick to my stomach worst than what the migraine gives me..the oral doses i dont really like because when i get one of these i need relief now and not in 30-45 mins after its been ingested...i did have those when i was first diagnosed with the headaches, but since i had tried the dissolving wafers those are much better(in my opinion)..i did talk today with someone about injections and i think i will ask for injections at my next appointment..either imitrex or an abortive shot like toradol and maxeran or something in that nature. i did ask about taking the 2 tabs at once for the triptans and it wasnt recommended (the max for triptans is 2 tabs in 24 hr period)

the ergots i did bring up to my doc and she frowned upon it because of the high risk of ergot poisoning..i have not tried any of the ergot class;..but i never thought of switching up the meds for the headaches like u said about taking one analgesic then the other..about teh seizure meds, my doc frowned upon that one also and said she woudl use those as a last resort but she did say there were better meds to try (she doesnt seem to like those to much for migraine patients)i think imay have a fussy doc or something because really all i need is relief i dont really care what she likes or doesnt like(lol)

the preventative i was taking that were making me sleepy and groggy were at supper time which is around 5pm- now when i was at the 1 capsule each evening..that went great then she had me going up to 2 then 3 capsules..the 2 and 3 is what made me so sleepy..but she wasnt content at the 1 capsule she said there would be no benefit..(and there wasnt when we looked back on my log)--i have been trying to find a new neuro that specializes in migraines but..my search isnt going so well, i am from canada-ontario so i have found 2 in toronto but that is a 2 hour drive for me--seem like the good ones are in toronto or london..but if it is my last option i may try one; i did talk to my husband about asking the doc for injection that he could give me as the last line of abortive..and he doesnt feel comfortable doing it..im not sure if in the state of that much pain if i would be able to do it myself; but i am willing to try; i got to ER maybe once a month now i really try to take care of it at home;

the fiorinal i take about 4 times per month..the headaches seem to be all over the place; at first we thought hormonal but they dont always come before my period--i do have headpain on days i dont have migraines; i have kept logs for triggers based on emotions,foods,weather..etc..i do notice on days were its rainy i tend to get them..when it storms they are very bad..i also noticed if im upset or worried about something..i tend to get them also(my worries really are the kids and work and my husband--i worry that if i get pains so bad..i know work gets upset because i need time away..then the kids miss me because im resting all the time..and even though my husband is great i know it must bother him that im always saying"i got headache" or i need my pills..)..now sometimes i go up to 7 weeks with no headaches..then i get slammed with headaches for the next 4 weeks or more sometimes; i havent noticed any patterns with food- i do try to eat regularly and eat well, i have a regular sleep pattern..some girls i work with think that there is a hormonal pattern and one lady suggested to talk about hormone testing; but my doc says im to young for that(im 27)..yesterday i had the worst headache yet; it started around 1pm (i was at work)nausea was setting in my vision went realy weird.i toughed it out until it was time to go home which was 4pm--i called my husband to ask him to pick me up and the car and pick up our kids because i was in to much pain..i got home i took 1 fiorinal(about415pm) and went for a very hot shower..went to bed my room is very dark..fell asleep for maybe 2 hour then i was awakened by the pain even worst than what i went to bed with..so i asked my husband to get my another fiorinal(about 615-630pm); had another hot shower..fell asleep again til about 1045-11pm..the pain was so bad at this point i really thought my head was gonna explode my husband said he woudl call the ambulance to bring me in(our kids were sleeping and we dont have any family here to watch them when i need to be brought into ER..i then said ok get me 1 more fiorinal and if this doesnt do then ill have to go in..i woke up this morning..not to bad but i could still feel some pain but it was bareable..i went to work and ended up leaving at 1230 because my head was hurting again..i havent taken anything yet i had a nice hot bath; and took an advil to see if that will do anything and debating to go have a rest until my kids are home from school..

i would really like to know why i get these so bad..does everyone get them this bad?..last night was almost to much..i have a high tolerance of pain but when it comes to these pains in my head and no one has answers all they give are medication after medication that leaves me feeling so out of it i cant even try to spend time with my kids--i feel very hopeless at times..i just want to be headache free to enjoy this wonderful i have with my kids and husband; i mean if a medication could work for me also that would be great--a preventative would be the best thing anyone could give me and make me have a headache once in a while; i read in a magazine at work about a new medication called frova(a new triptan) has anyone tried that one yet?.

thanks for listening these pains get to be pretty bad at times

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