Parkinson's Disease

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Support Group Meeting

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  7652.1
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  Oct-19 4:23 pm
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I went to my first support group meeting this afternoon.  There were about 150 people there.  Of course, not all of us have Parkingson's.

There was a speaker, Dr. Stephen Gollump of Lankenau Hospital in Philadelphia.  He talked about all the kinds of medications plus surgical interventions.  Of course, he was way over my head most of the time, but still it was interesting.

After his lecture I asked him about the Sinemet CR I'm taking.  He said he feels CR is more effective at night because the symptoms go up and down on it during the day.  He also prefers to wait until a diagnosis is made before starting a patient on meds.

I called the practice I am being referred to the other day.  They are scheduling in January now.  However, they had not received a referral from my family doctor.  So, I called my doctor's office and asked about it.  He wasn't in that day but the person I spoke to said she would send a copy of the notes from my last visit and hopefully that would get me into the lineup.

Dr. Gollump said he did not observe classic symptoms in me (in the short time that we were speaking).

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Support Group Meeting

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  7652.2 in response to 7652.1
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  Oct-20 9:13 am
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Glad you found a support group and sounds like it was an interesting day.  What did that Dr. mean by you not showing classic symptoms?  I can't help you much on the meds since I do the alternative method, but will be glad when you can get into see the specialist.

    

            
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Support Group Meeting

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  7652.3 in response to 7652.1
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  cl-lsb210  Member Icon
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  Oct-22 11:13 am
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Wow, sounds like a great support group with an awesome turnout! I'm glad you were able to attend. I also think it's wonderful that doctor took the time to not only talk to you but to offer his opinion.

It's amazing how long it takes to get an initial appointment with a neurologist. The good thing is that once you are established with one it's easier to get appointments. Hope you can get one soon.

((HUGS)))

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