Multiple Sclerosis

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3 day IV Fusion

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  7278.5 in response to 7278.4
from:
  hrdee
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  jenindc  Member Icon
date:
  Sep-22 1:37 pm
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  6

Hey jenindc,

Well, I will stick to what my experience has been and/or what I've learned from other people who have MS.  I was DX with MS 24 years ago.  I've been treating my exacerbations with SoluMedrol and it helps to end some of the major symptoms the appeared during the flare-up. However, almost inevitably there will be some residual disablement after the flare-up is gone.  Some symptom that wasn't there before the flare-up started.  That's not just my experience, but I've heard it said in other MS discussion boards.  Right now I'm typing this with a totally numb right hand that appeared in a flare-up tambour 4 or 5 years ago.  But you get used to it.  I console myself with the thought that, at least it's not like being in an accident where you sudddenly lose your right hand--you have a chance to accept it and deal with it.  I gave up driving about 10 years ago, because of vision problems and memory problems.  But I've learned to get around and to do what I have to do.

I wish you the best of luck.  ((HUGS))

hrdee



Edited 9/22/2009 1:38 pm ET by hrdee
jenindc  Member Icon
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3 day IV Fusion

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  7278.6 in response to 7278.5
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  jenindc  Member Icon
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  hrdee
date:
  Sep-29 8:24 pm
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Yes, that's true that many times a person does not fully recover after an exacerbation and treatment with solumedrol. Other times, people do fully recover with no increased permanent disability. I don't know the exact statistics on how likely each scenario is, but it's definitely not unusual for someone to make a full recovery, especially early in the progression of one's disease. I'm sorry that you haven't caught much of a break in this regard and have found yourself to consistently be in the group of people who don't fully recover. But that doesn't mean everyone will have that experience.

The point I was making to the original poster still stands -- which is that she can't tell which group (fully recovering or non-fully recovering) she will be in until she gives the solumedrol a chance to work and gives her nerves a chance to heal. Although you've had bad luck (for lack of a better term) in this regard, she might have better luck. There is a good chance she will fully recover, and my point was and is just that there's no point in her being too pessimistic about her recovery until she gives it some time and sees what the solumedrol does for her. She won't know how much she'll recover until months after the iv treatment.

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