Multiple Sclerosis

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jcs_dna  Member Icon
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could it be MS after all

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  7300.1
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  jcs_dna  Member Icon
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  Oct-20 7:43 pm
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Hi there,  I am 31 years old and two years ago I ended up in the ER because half of my body went numb.  They did an MRI with contrast and detected 1 legion.  They suspected MS and sent me to a neurologist.  He did a ton of blood work and a spinal tap.  Everything came back inconclusive.  The numbness lasted about a week, went away for a couple days and then came back for 2 more weeks.  Since then I still get numb in different places of my body but it only lasts several hours.  Other intermittent symptoms include:  I have extreme fatigue of the kind that saturates every cell in my body.   I have cognitive impairment of forgetting what I am saying mid sentence and sort of blanking out.  Balance is poor.  My vision can get weird under florescent lights.  My skin will get the creepy crawlys almost like an anxiety attack but I am completely calm.  Sensory integration issues. 

I went back for another MRI  in March and all they can see is that 1 legion.  My neurologist retired and the only other in my area is MEAN.  Could I have MS?  Due to the adoption of my baby, I don't want an official diagnosis or treatment but I want to know what is wrong for my own peace of mind. 

What do you think?

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could it be MS after all

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  7300.2 in response to 7300.1
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  jcs_dna  Member Icon
date:
  Oct-21 10:34 am
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Was the neurologist an MS specialist? If not you need to see a specialist for any chance at a diagnosis. It could be MS but it could be something completely different too.

An MRI with contrast and a spinal tap are "good" starts but there are more tests that need to be lined up including an evoke potential test and an EMG (Nerve conduction test). Sometimes getting an MS diagnosis is ruling out other things.

Now you've had space and time between two incidents which can also facilitate a diagnosis.

My DH had a general neuro who did all the right tests and yet still told us he didn't know and pushed us out the door. We took our paperwork an hour and a half away to one of the leading MS specialists. She took one look at the information and said it was obvious it was MS and diagnosed him THAT DAY. Then there was setting up medications etc which can take awhile. The sooner a person starts one of the DMDs (disease modifying drugs) the better for the long term prognosis.

When will the adoption be final? As soon as it is I would be pushing HARD to find out what the problem is because something is obviously not right.


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