Arthritis Central

Hi everyone. It's been a while. Lots of stuff going on here. I still don't have a formal diagnosis of my issues, yet the neurologist I saw last Thursday said I have tremors, neuropathy, and myopathy. All of those Parkinson's patients have, but he said he isn't comfortable diagnosing me with Parkinson's because of my age. He ordered a EEG and is sending me to a tremor "specialist" that works within his practice that will pinpoint where the tremors are coming from. He wants to make sure none of the medications I take are causing my issues. I feel that deep down in my bones I will get diagnosed with Parkinson's because I have every symptom and I have already gone over all of my meds with the doctors that prescribe them with me and they have determined they are not causing my issues. I failed the neurological exam he gave me in office. I was shaking when he examined me.

I feel horribly. The beta blocker they gave me to control the tremors is causing problems. It makes me so tired. Also if I don't take it before 7 AM my body has weird reactions to being without it. My pulse goes sky high, while my blood pressure is so low. All of this has me depressed to say the least and the new anti-depressant causes my blood pressure to be high so the beta blocker actually keeps it normal once my body starts to sort everything out. It makes no sense at all, but hey none of this makes sense.

My muscles are stiff now in addition to stiff joints so moving is a chore. Case in point, I was just trying to write down my weekly to do list and my hands are so stiff they don't want to bend enough to write. I am even typing without bending my fingers right now. I am going to massage my hands or a while and then try again to write down my list. I also have to get moving on what needs to be done today. I hope you all behaved for Molly and I sure did miss you all.

Love and hugs,

(((((((((((((((( Cyn )))))))))))))))))) welcome back!!  I wish your doctors could figure things out more quickly.  It sounds like you're having a miserable time of it.  I hope the EEG or the tremor specialist can get to the bottom of this.  I was just wondering if you've popped over to the Parkinson's board.  Lisa is a great CL and really knows her stuff.  Just in case, here's the link:  http://messageboards.ivillage.com/iv-bhivhparkins.

I think about you often and truly hope that all these medical issues can get resolved...and soon!  BTW, everyone has behaved themselves (cause you know I'd get the donkey after them if they didn't LOL) but it has been very quiet.

Take good care and keep us posted on any results you receive.  Love you!

Molly
co-CL Arthritis Central

Hi, Cyndi!  I, too, am waiting to see a neurologist for evaluation of possible Parkinson's.  It's a long wait, isn't it?  My appt isn't until January.

There are people with young onset Parkinson's.  Lauren Sue, the CL of the Parkinson's board, is a young onset patient as is another woman on the board. 

I've been posting there for a while and there is great support available!

Ooops....I called the Parkinson's CL Lisa, instead of Lauren.  My apologies!!

I did see your posts over there, Barb.  I hope your diagnosis is NOT Parkinson's.  I'm sorry both you and Cyn have had to wait so long to find out.  Very stressful!

Molly
co-CL Arthritis Central