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A Pam update.............

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  58539.1
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  Nov-3 4:19 pm

Just as I was logging off a few minutes ago the phone rang and it was Pam.  As you know, she's in Texas right now, with her son.  She said that when she arrived she was shocked at how bad he looked.  She said he had a "hollow look" in his eyes and his color was very bad.  Unfortunately, he wasn't able to go out trick-or-treating with his son as he had hoped....he just wasn't up to it, was feeling too bad, in a lot of pain, unable to breath.  However, yesterday....Monday....Pam took him to the doctor and they removed the device (sorry, I can't remember what it's called....Melissa will know, I'm sure) that they had put in to keep his lung from collapsing again.  Pam and her DS were both nervous about that, hoping the lung wouldn't collapse again when they removed the device, and GOOD NEWS, his lung remained stable! 

So this morning, they started the radiation treatments.  They are not dealing with the lung yet, they are doing the radiation on the brain (if you recall, the cancer has spread to his brain, is in the right frontal lobe).  They are treating the brain first because cancer on the brain can cause seizures, etc.  The radiation this morning went fine, she said.  It only lasted about 10 minutes, but the sessions will get longer each time, and I believe she said they would do radiation treatments for the next 14 days, then check and see if the brain cancer has shrunk.

Once they can get the brain cancer under control, then they will concentrate on the lungs.

Oh.....she also said that the doctors think her DS was born without a certain "factor" which would almost insure that he would get emphysema and/or lung cancer if he smoked.  The doctor said that a normal person his age would NOT have emphysema in both lungs, even if they smoked, unless they were missing this factor.  Tests have been done to determine for sure if he is lacking this factor/gene, and if he is (like the doctor thinks he is), it will be imperative that Pam's DGS knows that he must NEVER take up smoking, because this is a heredity thing, the absence of this factor.  Here is a link which I THINK is what her DS has, and will explain it better than I can.

http://www.news-medical.net/news/2008/05/26/38655.aspx

If that link doesn't work, try this one, sorry...

http://lungcancer.about.com/od/glossary/g/alphaantitryp.htm

I hope I have this right, I'm pretty sure I do, but if not, Pam will correct me when she gets back home to her computer, which will be late Thursday night.

She asked that I come here and give an update and also to ask you all to continue to pray for her son.  "Ladybug prayers are very powerful," she said, and we all know that is true.

Hugs all around.....

bbandhornofplenty.jpg BB horn of plenty picture by bumblebee50


Edited 11/3/2009 4:30 pm ET by bumblebee50
srpcep  Member Icon
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A Pam update.............

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  58539.2 in response to 58539.1
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  srpcep  Member Icon
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  Nov-3 5:31 pm

BB thanks so much for the update. Pam has been on my mind so much. I am still praying for the best outcome in all this.  It's just heartbreaking.

(((hugs)))

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A Pam update.............

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  58539.3 in response to 58539.1
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  bunkodeb  Member Icon
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  Nov-3 8:13 pm

I've been thinking (and praying) for Pam and Curt.
I appreciate the update.
You did excellent with the info, Missy!
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A Pam update.............

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  58539.4 in response to 58539.1
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  Nov-3 10:16 pm

Thank you so much for the update from Pam. I'm so glad she's made you our "go to" gal. You're so good at filling us in on details.

She and Curt have been on my mind all day today...been wondering how things are going down in Texas. It's too bad he wasn't able to go trick-or-treating with his son...I know he was really looking forward to it.

I'm glad the lung stayed inflated and they were able to get started with treatment.

I'm definitely continuing my prayers.

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A Pam update.............

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  58539.5 in response to 58539.1
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  battrup  Member Icon
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  Nov-4 12:20 am

Thank you for the update BB. Alpha-1 helps me understand his diagnosis of emphysema. I could not imagine how someone as young as Curt had emphysema even with his smoking history; thought (hoped) that part of his health problems was a mistake.

I'm so glad Pam has this time with Curt. Wish she could stay longer than Thursday. At least our weather has been perfect. She's not having to cope with storms or cold. Prayers continuing.

Hugs,

Melissa

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