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Autism Spectrum Disorders

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Here I go again

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  21126.1
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  Oct-30 10:42 am

Hello .. Altho I havent really had time to write much on these boards.. i have been reading when i have the time ..

We had all the evals done on our Skye and Nothing came back on the spectrum.. I was quite suprised considering she has had tons of flags .. but everyone says NO..

Now shes has been in pre K for a few week.. shes continuted all her therapy .. vision PT speech OT and now a behaviorist .. the Behaviourist observed her in school a few times and didnt like what she saw.. . has me concrned .. or relieved.. im not sure .. anyway ..

Skye had been in Day care for a year at 2 then went from day care to Head start Preschool last school year and now in Pre K .. The BT is concrned because skye is NOT picking up the social cues from any of her friends in school ..  she will try to play but she doesnt know how .. she cuts in line , she pushes she meltsdown crying hysterically .. no sharing no turn taking ..  she tries to itnereact but just cant seem to get the hang of it .. you would think after a couple of years of being exposed to school settings  somthing would kick in .. but not so far ..

Another red flag?? or are all these drs right saying No Never .. wont ever be an issue ??

The BT seems to think a DX of PPD will come once shes in regular school ... curious to what other people think that have been thru this.. thx

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Here I go again

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  21126.2 in response to 21126.1
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  Nov-5 2:44 pm

Argh, isn't that so completely frustrating?

I think the older kids get, the more evident problems often become, as they start to stand out more and more from their peers. That said, it's hard to keep waiting because precious time can be lost from when you can be getting them help.

I'd continue to work with the behaviorist at school, and ask what help they can give you for her being at-risk. Tests at this age aren't definitive anyway, so it's in their best interest to give her help now to prevent more being needed later on.

Has that behaviorist done a full assessment? Sometimes they are double-edged swords -- if they find something, you can get help and the school will listen to their own providers, but if they don't find something, then you're battling for them to believe you. It's sad when we have to hope their behaviors become evident and disruptive, but sometimes it's what it takes!

Wish I had good words of advice, but I'd continue to document everything. What she does at school, at home, and if need be, video it or take pictures. (I video'd my son at a very young age mid-tantrum, raking his face with his stubby nails and it was a 'wow' moment for one of our therapists.) Don't let up on them if there are worries, and become her teacher's friend so she talks to you more often and sees you as an ally.

Good luck to you...

Lily

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