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Birthmarks and Hemangiomas

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Some of us are getting together ...

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  8074.1
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  Jul-22 9:00 pm

In Milwaukee.  Sorry I did not think of posting this here before.  Some of us PHACE Mom's are getting together in a park in Milwaukee tomorrow.  Then on Friday there is a Vascular Birthmark Conference at the Zoo and then a fun day in the afternoon at the zoo. 

Barbara - Mom to Veronica aka Roni- Large facial Hemangioma

Just Remember that God does not give us more than we can handle. 

Philippians 4:13  I can do all things through Christ who gives me strength.

 

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Some of us are getting together ...

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  8074.2 in response to 8074.1
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  joanne4j  Member Icon
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  Jul-23 8:52 am

Hey Barb!

I think thats great that you guys are able to get together!

 

How are you doing?

 

 It's been SO quite here on the boards. I guess it's cause the kids are getting older and everyone is just so busy (or in my case LAZY, LOL).

Hope all is well with everyone, tell those that you meet that I may know from the other side Jaylee and I said hi and we are doing well.

 

Jo

          

 
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Some of us are getting together ...

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  8074.3 in response to 8074.1
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  Jul-23 1:00 pm

Hope you're having a great time and taking lots of pics to share!

~Laurie

e-mail me!
Melissa's Hemangioma Page



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"Nobody can make you feel inferior without your permission."
~ Eleanor Roosevelt ~


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Some of us are getting together ...

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  8074.4 in response to 8074.3
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  Jul-25 8:45 pm

I don't get to move yet.  Some stupid law about can't move more than 100 miles away from their dad.  If he gets a job downstate then we can move.  So please pray he gets a job downstate. 

We had fun Thursday night and we had about 7 PHACE families that were able to make it.  It was great to meet them.  Elyse, Emilia, Emmaleigh, Cooper, Sophia, Hailey, and of course Roni and our families.  Quinn's was supposed to go but they had to change their plans. 

Yesterday, was fun at the zoo.  Kim spoke and did a great job.  Dr. Beth Drolet and Dr. Kelly Duffy also spoke.

Barbara - Mom to Veronica aka Roni- Large facial Hemangioma

Just Remember that God does not give us more than we can handle. 

Philippians 4:13  I can do all things through Christ who gives me strength.

 

last visit to this board
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Some of us are getting together ...

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  8074.5 in response to 8074.4
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  Jul-27 7:14 pm

Seven families... nice! Glad to hear you had a good time w/ everyone. Too bad Jen, Quinn and the rest of their family couldn't make it. Next time.

Are you looking to move closer to some of your family? How are YOU?

~Laurie

e-mail me!
Melissa's Hemangioma Page



Help support NOVA and the VBF...
NOVAnews and

Click their logo(s) to find out how.




"Nobody can make you feel inferior without your permission."
~ Eleanor Roosevelt ~


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