Hi all........
Alexa is adjusting to third grade. I cant believe she is 8....... She is in cheerleading. We are going to see Miley Cyrus in concert soon,so she is thrilled. She is so loving and sweet. It does not take much to make her happy.And she is sooo appreciative.
As for the pws, we are doing her maintanance tx's, every year and a half to 2 years or so. She has had ,I believe 13 treatments by the time she was one, and we are over the 20 tx mark. There has been no improvement really since she was a year old so until new lasers or more advancements are made, I am not aggressive anymore. I am afraid of causing more harm than benefit at this point. She does make comments that she wishes it was not on her face, which obviously saddens me. She also thinks that if anymore looks at her for any length of time, she asssumes they are looking at her pws and think she looks funny. I am addressing her feelings, not ignoring them. But I never stop reminding her what a great person she is and that is part of her and who she is.
I also just found out that my 12 year old son,has some hearing loss on one side. They believe it was since birth and it is nerve or neuro related. What I find strange is my daughters pws is the left side and his hearing loss is left ear. Stops and makes you go hhhhhhmmmmmm..... I mentioned it to his ENT, and he says that may well be some "correlation" to it, but obviuosly no research thus far. I just thought nerve /vessel malformation with the pws and nerve issue with his ear.
I am still working nights.Walking zombie. lol
Elena
xoxoxoxox
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