Hypotonia

I'm sooo glad I found this message board!

My youngest daughter Autumn is 2 years and 1 month old. She still cannot walk, although she can cruise around the house holding onto furniture fairly well. Crawling is her main mean of transportation.

She wears plastic things in her shoes, although I'm not sure if they are still AFOs, as they don't come up past her ankle.

She has no other medical issues besides the hypotonia, in all other areas (speech, social, problem solving) she has tested at age level.

Once a week a physical therapist comes out to the house through the California Early Start program, she has been making small improvements with that. She's been doing that since June. I took her to a neurologist a few months ago who told me "well this could just be the way she is".

I'm just looking for other mommies who know how this feels. I never thought I would be looking at walkers for my 2 year old. :(

This is Autumn. Hope to talk to you ladies all soon!

Welcome!!

So glad you found this board!! This group of people has helped me keep my sanity!!! You can read our story on our web site:

www.johngarrettevans.weebly.com

My eyes are crossing, so I am headed to bed. Just ran 7 miles with two friends, preparing to run a half marathon in January to raise money for a muscular dystrophy cause, so I need to get some snooze.

Hope you find this a great place to relate, meet moms who understand and get ideas. Oh, and my youngest used a reverse walker for three days and then walked right out of it!!!!!

Welcome, and look forward to getting to know you!

Blessings,

Clara-Leigh

Garrett, 4 years old, mild congenital myopathy,possibly MITO so hypotonia, g-tube from December 06-Fall 07, constipation, gross motor and speech delay, heart PDA repaired by hearth cath. Winter 08. OT once monthly, PT two times weekly, Speech 3 times weekly, water therapy weekly and as many horseback rides as we can fit in at home! Addie, 8 years old, mild congenital myopathy, possibly MITO. Low tone, tires easily, poor endurance. PT weekly, regular swimming and rides horses 3-4 days per week and competes in barrel racing and other timed events. Ainslee, 6, just about too normal some days, but really patient with all of her siblings' therapies!! Oh, CONSTIPATION...how can one forget that???

Hello Tiffany, glad you found us. It's encouraging that Autumn is on target in all areas except gross motor!!!

My grandson, Bricen, took his first steps a couple of days before he turned two; however, he didn't really walk until a couple of months later.

I look forward to getting to know you and Autumn!!!

Cheryl - Grammie of adorable Bricen  (3 years old)

 

your way, my way,

Bricen's Way

http://bricensway.blogspot.com