you are here: iVillage Pregnancy & Parenting Pregnancy & Parenting message boards Hypotonia  / Info, Support & Resources  / 

Hypotonia

125535 messages posted to this board
find messages about   
welcome!
 
last visit to this board
Nov-24


messages posted
this board
103

add to friends
ignore posts
discussion title:
 

feel i should be doing more

emoticon:
 emoticon
message #:
  20527.1
replies:
  3
from:
date:
  Nov-5 12:23 am

it has been such an exhausting journey to acceptance and now we are lucky enough to have great therapists. but between OT PT ST play therapy appts want to add water therapy and a music class i am supposed to do alot with him at home and have to admit would rather read to and cuddle him.............
so not constantly reminded and working. know i have to start thinking differently encouragement gladly received! thanks for listening
last visit to this board
Nov-8


add to friends
ignore posts
discussion title:
 

feel i should be doing more

emoticon:
 emoticon
message #:
  20527.2 in response to 20527.1
replies:
  3
from:
to:
date:
  Nov-5 8:43 am

I can remember that. You just get so sick of all the therapy, especially if you're not seeing much improvement. Its not like you need to do it all day long. Do one or two 10-15 minute blocks working on something he has been doing in therapy. He needs happy mommy time too, not all work. Don't beat yourself up about it, just do what you can. Find things he likes. Kristin has always liked to swing so I paid a little more to get her a swing with a high back and she still loves it.

I'm glad you seem to be feeling a little better about things. It is a hard journey and its a process. Kristin is a somewhat extreme case compared to most kids but after 4 years some days are just harder than others. She gets a lot at school now so I dont' worry too much about it at home which is a nice change after 3 years of EI, taking her to therapy and feeling the same way, like I was never doing enough at home. You are doing great. keep it up.
Kari

last visit to this board
Nov-24


messages posted
this board
199

add to friends
ignore posts
discussion title:
 

feel i should be doing more

emoticon:
 emoticon
message #:
  20527.3 in response to 20527.1
replies:
  3
from:
  axpan
to:
date:
  Nov-5 2:41 pm

i struggle with this feeling as well.  i also put lots of pressure on my husband to take advanage of any time he has with her to maximize the possible impact, often resulting in us fighting about what should be done and how often.  i think sometimes though it's just my anxiety getting the best of me. 

there's lots to be done but i'm trying to focus on two thoughts when i get overwhelmed.  first, what encourages and helps a child sometimes is unpredictable.  for example, my daughter is at her most verbal when we're driving (maybe it's because she doesn't have to worry about her physical challenges).  so i can spend time trying to get her to talk with books or move her lips with some techniques a st showed me or i can get in the car go somewhere and listen to her "talk".  the more experiences she's exposed to the more she surprises me.  we've had our best moments trying to walk at the mall where she was highly motivated to see things and people and other times at home she just can't be bothered to try.  another thing i try to remember is that although i'm really motivated to improve her functioning and abilities i also have to keep in  mind that this is a little girl who needs to feel loved and accepted for what she is right now. constantly pressuring her, even in the most positive way is not necessarily helping her love herself and be happy.  we all need time to just relax and be.  i think for some of our children therapy and all the exercises we're instructed to do is hard work.  they need breaks from it like we need breaks from our work. 

hope you are able to find your balance and peace between doing and being. 

hugs, Alta

Change the number of messages
displayed on this page in
Indicate your interest in the discussion
   
Get updates to this discussion
delivered by email