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Elena - surgery Jan 24.

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  5575.1
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  1/11/2005 7:50 pm

Elena is 4 1/2 now. I posted here a lot when she was younger (and I had internet). Last December I had her back to the specialist (who switched to Ponseti, thanks to us) and he agrees with me that she needs surgery. I have not been happy with her right foot for a while. He is going to take the tight tendon that is pulling her foot inward and move it to the outside of her foot so it pulls it nuetral. The good news is he kept comparing her right foot to her left and I reminded him that she was bilateral and he had forgotten! That means her left foot looks really good! I've been thinking she needs surgery and now that he agrees at first I felt relief and now I feel more nervous. How is she going to do? How are we going to get along with her in a cast for six weeks at this age? The good thing is she's only 31 pounds so she's not TOO heavy to carry!

Anyway, just thought I'd update.

Marie

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Elena - surgery Jan 24.

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  5575.2 in response to 5575.1
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  1/12/2005 9:39 am

Marie-
It's good to see you post again! Is Elena having the ATTT?
What doctor are you with now? Are you still in Mexico or in the US now?
There are quite a few kids who've had the ATTT on the yahoo ns4cf group, so they might be better able to answer specific questions that you have.
Keep us posted-

Regards,
Jenny & Kelly

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Elena - surgery Jan 24.

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  carmellb  Member Icon
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  1/12/2005 1:25 pm

Hi Marie!

Good luck with the surgery. I'm sure she will do just fine. She doesn't weigh very much, so I would imagine they will put a walking-type cast on her leg. Braydon's surgeon put extra fiberglass on the underside of the cast so he could walk and bear weight on his leg, without damaging the structure of the cast. It worked fine for him. They have a cast shoe you can put over the cast to protect it. Braydon's last surgery was March 2004 - just last year. He was almost 9yrs old, and was able to bear weight on his leg. Each surgery is different, so only the surgeon can tell you exactly what they will be doing and how the recovery should go.

Pain management hopefully won't be a big problem. Braydon does well with alternating Tylenol and Motrin (ibuprofen) every three hours. Within a week after surgery, she probably won't need any medications, and maybe even before then.

I wish you the best! Let us know how things are going!

Carmell
mom to Kara 18, idiopathic scoliosis and hypothyroidism, Blake 14, GERD, and Braydon 9, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (implant 8/01), thoracic insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, bicuspid AV, single, umblilical artery, etc. http://pages.ivillage.com/carmellb/myfamily
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Elena - surgery Jan 24.

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  5575.4 in response to 5575.1
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  1/13/2005 8:24 pm

Hi...I remember you and your daughter. It's been a long time since I visited this site. My daughter Alliya is also 4 1/2. She went thru serial casting then Ponseti casting, etc....and will be having surgery in Iowa on January 25th. I'm a nervous wreck about it. wondering if i did the right thing by not just giving her the surgery when she was a baby. Seems like all we did was put off the inevitable. Alliya will have her inner tendons moved to the outside on both her feet. She is in casts now preparing for the surgery. It's tough getting her around and keeping her entertained. Good luck and please e-mail if you want to chat or compare notes.
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Elena - surgery Jan 24.

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  1/15/2005 7:06 pm

HI Jenny! We moved back to the US in the summer of 2003. Since our income here is less than it was in Mexico we don't even have a working computer, let alone internet. About once a month I go to my parent's house and use theirs. Someday things will get better and I'll be around more. As for if she's having an ATTT, I have no idea. Dr. Hotchkiss is calling it a tendon transfer on her right foot and also lengthening her achilles tendon on that leg. I'm not too "worried" about it, I'm a mom so the "what ifs" keep popping up. How are you guys doing? You're in Wisconsin or Illinois now, aren't you? Do you miss the UP?

See ya, Marie

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