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Developmental Delays

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Went to Shands this Morning

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  Oct-8 1:03 pm

and what they told me was he has Hyptonia and they want to schedule a MRI and they want him to see a genetic counselor. :(  I' m scared and worried.

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Went to Shands this Morning

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  Oct-8 4:30 pm

What a cutie!

Welcome. It can be a scary time wondering whats going on. Try not to let your mind run away. The doctors often don't really have the answers and when kids are young its hard to know how serious things are. I hope things come back okay and I hope you can get the workup done quickly and put your mind at ease. Hypotonia always has a cause but they can't always pinpoint it. Some kids come pretty close to catching up with everyone else and some have more issues. Hang in there. Trying to get to the answer is the hardest part and I know its scary. We are here for you.
Hugs.

Kari

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Went to Shands this Morning

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  Oct-8 11:10 pm

Hi there,

((((((Hugs)))))) I remember how scared and worried we were when Sarah's opthamologist wanted her to get an MRI as soon as possible. She has vertical nystagmus and also hypotonia. I think it was scheduled within a week or so. Freaked us out! Also been to genetic Dr...all tests have been normal thus far. It is hard not having answers and it is hard going through tests. I hope testing goes well and that answers come for you and that your little guy gets stronger and stronger! He is a cutie! Let us know how things go. Hang in there...one day at a time.

Katy   Blessed mom of 6 girls, youngest Sarah born May '07 with hypotonia, vertical nystagmus, developmental delays

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Went to Shands this Morning

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  Oct-26 10:59 pm

Saw your post quickly on the hyptonia board and just caught this one as I was reading up on some things...question...where do you live...I noticed you said you went to Shands.

Doris

Blessed mother of 3!

Jonathan (3)-my silly little musician, Ailani (4)-my curious diva and Gabriela (7)- my soccer star! Photobucket
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