you are here: iVillage Pregnancy & Parenting Pregnancy & Parenting message boards Hearing Impairments  / General Discussion  / 

Hearing Impairments

10881 messages posted to this board
find messages about   
welcome!
 
last visit to this board
2/19/2007


add to friends
ignore posts
discussion title:
 

The nightmare continues.......

emoticon:
 emoticon
message #:
  3283.1
replies:
  5
from:
date:
  7/22/2006 10:11 am

Well, we went to Riley's Childrens Hospital yesterday and I STILL don't know the degree of Max's hearing loss and still have no numbers, nothing.  When I called them they said that they were going to do the same tests that were done at the audiologist that we went to closer to home and I told them that they had done those tests and it was inconclusive that we needed an ABR. They told me they were specialized and that they usually got what they needed from these tests. Well we drive 2 hours and 10 minutes up there wait for an hour and still no answer, it's inconclusive and they will call to schedule and ABR within the next two weeks.  I am so upset. How can I help my son when I can't even get an answer? He will be 18 mos. next Friday. Something needs to get started. Why wouldn't they go ahead and do the ABR? They had the report from the other audiologist.  Uggghhhhh. I just want to know so I can make some kind of decision. 

It appears from the test where they stick the thing in the ear and measure response that he has some degree of hearing in his left ear, the right ear didn't show anything, it was inconclusive. The soundbooth test he was able to hear sounds (very loudly) coming from the left, but only once or twice from the right. It was so loud I could feel it in my head.  Has anyone got any ideas about this? Will he be able to wear hearing aids and hear with those since it seems he has some hearing?

I guess I need to order a signing book. I would like to use ASL so I need a book for me and a book that would show signs with pictures for him. Anyone have any good recommendations? Any suggestions? I'm just so lost not knowing. I know that I will be making that drive at least two more times (however, it's beginning to look like it's going to be a lot more) and while I will do it for my son, it is so draining as it is a little over 4 hours in the car.

Coupled with all of this, I just don't understand how long he has been this way and why didn't I realize it before now? How could we have gone this long without me knowing? What kind of mother am I to not realize it until he was about a year old? ":c(

Kim

Image hosted by Photobucket.com
 
 
Image hosted by Photobucket.com
last visit to this board
7/15/2007


messages posted
this board
88

add to friends
ignore posts
discussion title:
 

The nightmare continues.......

emoticon:
 emoticon
message #:
  3283.2 in response to 3283.1
replies:
  5
from:
to:
date:
  7/22/2006 10:40 pm

I'm sorry to hear that you are still not having success with the medical "stuff." I don't have any advice for you in that avenue, but Maria may...

As for books, there are books, Cd-roms, videos and a plethora of materials available. You may want to check out the books available at Harris Communications (baby section at http://www.harriscomm.com/catalog/default.php?cPath=1188&osCsid=3a5af3bac4b4e483190e0e079147624e) or DawnSign Press (Children and Parents section at http://www.dawnsignpress.com/shopping/category.cfm?CatID=1). You can also go to Amazon.com and do a search for ASL and babies. Some of the books have the "look inside" feature and you can get a preview.

I hope that this helps and good luck with your ongoing medical trials and tribulations.

Dawn

last visit to this board
7/24/2006


add to friends
ignore posts
discussion title:
 

The nightmare continues.......

emoticon:
 emoticon
message #:
  3283.3 in response to 3283.1
replies:
  5
from:
  luves2
to:
date:
  7/24/2006 10:16 am

I can totally understand. We have to drive three hours, total six for the day, to Philadelphia. You are not a bad mom. My son was almost a year and a half before we knew for sure. We were in denial. Maybe your son could hear more at birth, you say yourself he can hear loud noises. We thought Indy could hear, afterall he laughed, cooed, one time we swear he mimiced a sound I made. He is profoundly deaf in both ears. After the ABR you should know that day. We were told before he even woke up. He has other "problems" so we took it in stride. Since your son can hear some things, he'll more than likly get hearing aids. We started with them, but he still couldn't hear anything. Now he has a cochlear implant. He got it a little after he turned two. He is now four and is turning to his name and sitting on comand. As far as signing you should check out signingtimes.com. They have some really good DVD's. In some areas they are going to have a kids program on PBS. We also had some picture books we got from a company called Garlic Press. You may want to check out the early intervention programs in your area. We had a teacher of the deaf coming out once a week. It was alot easier to learn from her than a book. Sorry this is so long. I'll end with you are a good mom for looking for help now. I have learned many times in the last four years it is never too late. Good luck and God Bless. Christyne
last visit to this board
8/11/2006


add to friends
ignore posts
discussion title:
 

The nightmare continues.......

emoticon:
 emoticon
message #:
  3283.4 in response to 3283.3
replies:
  5
from:
to:
  luves2
date:
  7/24/2006 10:40 pm

I realy like the book the joy of signing. I was going to recomend signningtime as well. Also check with your state (deparment of Public health??) and find out if the ofer anything in my area they ofer a family sign language program. to teach familys ALS.
You are a great mom you are doing all you can for your child and tring to find out the answers!! Hang in there the abr will answer your questions. I know how frustrating it can be to not get any answers I have been there many hours on the phone with different audoligest regarding my dd.
last visit to this board
7/15/2007


messages posted
this board
88

add to friends
ignore posts
discussion title:
 

The nightmare continues.......

emoticon:
 emoticon
message #:
  3283.5 in response to 3283.4
replies:
  5
from:
to:
date:
  7/24/2006 11:12 pm

Unless it has been revised in the past few years, The Joy of Signing has outdated signs. It also tends to use "English" signs as opposed to American Sign Language (ASL) signs. There are differences and, as they grow older, most kids will recognize many permutations of the same sign. In fact, one of my students (deaf-blind) had a grandparent who signed "hamburger" when she meant "school" and she would tell him "Time to go to hamburger." Of course, he understood "school" because he was a smart little cookie AND when he would sign "school" to her, he would sign "hamburger," but with everyone else, he used the appropriate sign for "school." Amazing how flexible kids are!

When I had to learn Signed English for a student, I used "Signing: Signed English -- A Basic Guide." If you want to check it out, go to http://www.amazon.com/gp/product/0517561328/sr=1-1/qid=1153796730/ref=pd_bbs_1/103-5630394-0511804?ie=UTF8&s=books. For my kiddos and their parents, the pictures of the signs were clear and easy to understand (I had to enlarge them, of course).

Change the number of messages
displayed on this page in
Indicate your interest in the discussion
   
Get updates to this discussion
delivered by email