I normally just lurk around here, have posted a few times. Brief hx. My son is now almost 16. When he was 10 he was diagnosed with a large 28mm ASD. This was repaired in the cath lab and things went great. After about a year he started havng diizy spells and getting lightheaded. We noticed is pulse was always pretty low. We saw our card who basically said it was nothing. Even sent is to ENT to look for an "ear" problem. ENT said you don't get brady with a ear problem. So we went back in Sept for our regular chekup. Basic rythm is sinus brady with runs of junctional and some 3 sec pauses. His lowest recorded HR was 28. I about fell off the chair. Again, our doc didn't feel it was anything because he's a active kid. I told him, he's active, not a triathelete. So he talked to an EP specialist to see that he thought and they decided to do a 30 day event monitor. We all thought we were looking for pauses and blocks with this dizziness. We managed to catch on and it was actually a run of SVT that converted into a extremely bradycardic rythm(per the report) Now they put the monitor back on him for 30 more days. He takes it off next week and we've not caught anything more. There's talk of a EP study, but they really wanted to see more episodes. I'm at a loss for what to do. He's starting to drive now, I don't want him passing out and killing someone. He's extremely tired all the time. That's been blown off to. SHould I demand the EP study or jsut continue to watch this. His previous 2 holters showed lowest heart rates of 40/50. Now with it donw to 28, I"m afraid what the next one will show.
Gretchen
