Sandra -
I'm sorry that you're going through a tough time. I can completely relate to the feeling that you describe. Our Daughter was sick from the time of her birth throughout her entire life and she was a medical mystery. No one could figure it out or why she was the way that she was. There were often times when she'd have test results come back that were "mutually exclusive results" or results that were "incompatable with life" ...
I distinctly remember feeling "WHY ME!" Why did this have to happen to us? Why does this have to be our FIRST child? Couldn't this have been our third and so we at least knew that we could have children? And good God, could you just please tell me what's wrong with this child so that I could work to "fix" it or deal with it or know how to move forward? It's sooooooo unfair to leave me in this situation where I am totally incapable of knowing how to move forward or move back. And why did she have to die? Do I deserve MORE pain then I've already suffered? This doesn't happen to ANYONE I know... why should it happen to me??
All this basically to say that I can relate. I do think this is part of the grieving process -- for me, after this stage I got really angry and also felt really guilty. But I've now arrived in a place (almost 3 years out...) where I don't feel that anger/sadness/questioning all day every day... For me... finding a place to vent those feeling and being heard was a really important part of my journey. And I used this board for some of that too.
Hang in there... we're all here for you!