discussion title:
Follow-up with neurologist
Had a follow-up with the neurologist office at Children's yesterday. They suggested that we look into a communication device for Gabby through the school district, when she starts at the special needs preschool in January (assuming she qualifies, of course). She said the school might pay for it, and if not, we could come back to them and they could likely help us out. To clarify, the communication device would likely be some kind of computer, where Gabby would press a button that has a picture of what she wants/needs, like "apple" or "banana", then the computer would say the word for her.
In the meantime, she suggested working with Gabby's current therapists to create a picture book of familiar things, like favorite toys, people, routines (bath, sleep, diaper change), foods, etc. It would hopefully cut down on some of her frustration, and help her cognitive/communication development, as well. I talked to her lead therapist, and she's going to talk to the team and come up with a plan.
Anyway, we have a lot of appointments in the next month, including results of her genetic testing, an ultrasound on her kidney and bladder with a follow-up with the urologist, testing for the school district, etc. I'll be sure to keep you posted.