Juvenile Diabetes

Thought I'd give an update on my ds since you were kind enough to take time to give me advice!  We've been back and forth to the doc for the past week.  We are waiting on testing to come back that will take about a week or two they said it will show if he has the antibody (please feel free to correct me if I'm saying something that doesn't make sense, I'm learning about this disease).  The ped thinks he might be very early in developing type 1 diabetes, I didn't realize it could take time to fully develop I thought once you had symptoms they wouldn't come and go.  I'm still struggling at times w/ the docs but I think I have one who is finally seeing what I am, I understand why the doc wouldn't send me to an endo right away b/c every time he's in there his bs is w/in normal range.  Yesterday she saw how much he is urinating, we were there 30 min and went through two diapers.  I brought him back in yesterday b/c that morning he woke up and was covered in urine, his entire shirt and pants were soaked it was even on his pillow, it was like someone poured a bucket of water in his bed I've never seen that much urine come out of someone so little.

His ped also said they will be looking for a metabolic disorder.  Is this the same as diabetes?  I know I should've asked when I was there but I was a little overwhelmed and didn't think of it.  I'm still keeping my fingers crossed that maybe it's something else very similar but unfortunatley it seems to be what the doc it saying and he's just very early on.  The strangest thing to me about all this is about a month and a half ago he had Coxsackie virus and these symptoms really became noticeable abot two weeks after being infected w/ the virus, is there a connection between the two!?  Thanks again for all your input over the past few weeks.

  

                       

                                                                                                                                                                            

I'm so glad that you updated, I've been wondering how you were doing. I do know others who's children have had the Coxsackie virus right before they developed type 1 diabetes. To develop type 1 you need the gene and some sort of trigger, the trigger is never the same. We do not know what caused Kaylee to develop diabetes, but a lot of people can pinpoint an illness that happened right before symptoms started. Medibolic disease and diabetes are two different things.  If his antibodies come back negative please do not take that as a he doesn't have diabetes. There are times, an typically very early on, where the antibodies are there yet so they aren't picked up in blood work. I'd encourage you to keep a log book, keep a meter, and check him, randomly, and not always at the same time each day. skip it around and see what you are seeing. One good time to check would be at night, after dinner, before bed. I believe with Kaylee that in the morning her glucose was a lot lower because her body had time to catch up while she wasn't eating, but as the day went on the pancreas couldn't keep up so her bg started to get higher and higher. so random checking would give you a better picture of what is going on rather than checking at specific times each day.

Please keep us updated, and I'm glad you've finally found a dr. that is listening!