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scared and confused about DS health

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  2003.1
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  4/17/2008 2:40 pm

One of my 18 month old twin DS's had allergy testing done yesterday they tested for 23 different things and it all came back neg.(even though the doc said that he had environmental allergies a few months ago) which is what's making his asthma an ongoing battle and still is today.  As bad as it may sound we were hoping that he had an allergy to even just dust ir something like that  because it would be the answer to so many other health issues.  Now on Saturday he 's getting an UGI done and they are also doing a sweat test on Tuesday, if these test come back neg. they will do further testing with his immune system and for celiac disease, he also has on going sinus problems.  Does anyone have any experience with any of these health issues, this is all new to me and I feel so confused!

Please help!!!!!

Amy
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scared and confused about DS health

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  2003.2 in response to 2003.1
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  tmpavlac  Member Icon
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  4/17/2008 4:12 pm

Amy...do NOT worry about the results of the allergy testing coming back negative. I'm surprised that they chose to test him that early and tell you that the results would be reliable. We've seen MANY doctors (pediatricians and a couple of different allergists) and they have ALL said that allergy testing before the age of 5 can be pretty unreliable...and even sometimes after the age of 5, kids don't always test positive for things that they probably are allergic to.

My DD was tested at 2 years old and came up with nothing that she was allergic to. She was also tested at age 3 (almost 4) and still came up with nothing. She doesn't seem to have the horrible allergies that some kids have that is associated with asthma, but she also does get some times especially in the spring and fall (and occasionally in the winter when the heat is on a lot) where she is sniffing and snorting and she has the nasty post nasal drip that isn't associated with a cold. We've tried taking her off of Singulair and while I don't believe it's helping her asthma any, she definitely gets more snuffly and snorty when she is off the Singulair. So, for now we keep her on it.

I wouldn't take a lot of stock in the results of the allergy testing on an 18 month old. I would definitely go through the sweat test (it's a good and easy way to rule out CF). Follow what the doctor recommends for other testing, but I would NOT be surprised if he comes up with having allergies that show up on testing in a couple years, if he's got sinus issues. (((HUGS)))

BTW, my DD isn't a celiac, but she's on a gluten-free diet for other reasons. And I noticed a GREAT difference in her health this past winter. Not sure if it was just a mild winter for us, or if it has something to do with the G-F diet. If you want more information and recipes for a G-F diet, let me know. I have started a blog (just very recently, so it's not super intensive) with some easy G-F recipes that everyone can eat without breaking the bank. There is so much out there that kids can eat that don't contain wheat, rye, or barley! :)

Keep us posted!

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scared and confused about DS health

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  2003.3 in response to 2003.2
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  tmpavlac  Member Icon
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  4/17/2008 9:40 pm

Thank you for your input I didn't know that the allergy test could be so unreliable for younger children his allergist didn't say anything about that but his ped was very surprised that there wasn't an allergy to dairy bc we've been having so many issues pointing to a dairy allergy. Do all food allergies have symptoms related to his sinus problems?  Hope your DD is doing well and thanks again!!!!!

Amy
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scared and confused about DS health

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  2003.4 in response to 2003.1
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  4/18/2008 9:10 am

Amy,

I think I've replied to your messages before.  My DS (9) also has bad sinuses, asthma, allergies, etc.  ITA w/the pp.  DS's been allergy tested 3 times - 3, 5, & 9.  At 3, he was completely neg, just like your DS; however, just short of 2 yrs later he tested pos to several things and started allergy shots.  Just this past Feb, he was retested - some of his allergies are resolved but he now has several new allergies.  DD was tested at 2 and 6. She had a few pos @ 2, started shots, but had tons of new allergies at 6.  It is not at all uncommon to get neg results when they're young and pos when they're older because it takes several seasons of exposure for the allergy to develop AND to show up on testing.  If you're still concerned about dairy, I'd ask for a RAST test (blood test).  Our allergist's protocal for food allergies is to skin test first.  If they test neg to something they've reacted to in the past, he follows up w/a RAST test.  If both are neg, then he considers them neg but not unless BOTH are neg.  Also, if his symptoms are GI related, he could be lactose intolerant.  If that's the case, limiting dairy and/or using soy, rice, or lactose free substitutes will help significantly.

I know the sweat test is scary but it's a really common rule out (the vast majority of those tested are neg!)  Both of mine were sweat tested.  DS was also tested genetically because of his asthma/sinus/GI probs.  The hard thing w/CF is that no test is completely conclusive.  Be sure to ask what your DS's results are.  Less than 40 is considered neg, but there have been reports of false-negs in kids whose scores were in the 30s so definitely ask for the score.  It's a non-invasive, easy test.  Just dress your DS warmly and have him walk around (to work up a sweat).  With that test, you should have answers the same day (or very next at the latest).  We did the immune testing thing, too.  It's just a series of blood draws over several weeks (plus an immunization in between).  The initial test will at least rule out anything really bad but it will take a while to get full answers on that one.  Probably the hardest part w/the UGI is drinking the barium (YUCK!).  Keep in mind though that even if the child doesn't reflux with the UGI, it doesn't mean reflux isn't an issue.  If you have reason to believe your DS has reflux even after the UGI, you may want to ask about doing a trial of a reflux med to see if there's improvement.  The PH probe is considered the gold standard for reflux testing but it's a more difficult test (we've not done that one).  My recommendation is to just keep pushing for answers and/or aggressive treatment. 

All 3 of mine have asthma and all 3 had recurring ear infections til age 3. It was hard because they were constantly sick when they were little (EIs, pneumonias, strep, sinus infections, croup, etc.  Oldest DS even had whooping cough and chicken pox.)  My ex-pedi kept saying they'd get sick less as they got older.  It was not at all comforting at the time, but the truth is, it DID happen.  They still aren't kids that get perfect attendance, but they ARE significantly healthier.  DS just had his first asthma flare in a YEAR!!  First pred use in over 2 years.  I honestly NEVER thought I'd see the day he'd go a full month w/o an asthma flare or the need for an antibiotic (or pred or sick DR visit), but it happened.  DD was easier because her issues were (still are) almost 100% allergy related.  DS's were a combo - silent reflux, very poor immunity to pneumoccocal/streptococcal bacteria, & allergies.  DS still has bad sinuses and according to our ENT will likely need another sinus surgery before he's an adult, but his health is much improved.  My advice is just to keep pushing until you either get answers, or you see big improvements in your DS's health. 

Good luck w/this latest round of testing.  I know it's stressful and scary but I really think you're on the right track!!

Mel

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scared and confused about DS health

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  2003.5 in response to 2003.1
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  4/19/2008 8:20 pm

I have nothing to add to what the other woman have wrote but I am sending lts of hugs your way. I hope they come up with a reason and get him better soon.
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